About Scarlett

Scarlett is a vibrant, funny, and very sweet kid. She has a genetic disorder known as Neurofibromatosis Type 1 which causes tumors to grow on her nerve endings. Unfortunately, Scarlett’s tumors grow on both side of her head, in and around her throat, larynx, sides of her face, and upper chest.  We started this blog to keep our family and friends, who are spread around the world, updated on Scarlett’s journey.


ComicCon with Yoda; definitely her mother’s daughter #GeekGirls

Princess Zombie Donut for Halloween

Thumbs Up! Scarlett at Riley Hospital for Children in Indianapolis

Traveling for the research trial

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